Cautious Optimism

After a year and a half of increasing and continual muscle spasms, we may have found a medication that can help, and some answers along with it. As the title says, I am cautious about this optimism, because there are so many "if's" that go along with it.

One type of dystonia is Dopamine Responsive Dystonia (http://www.dystonia-foundation.org/defined/dopa.asp), and it is usually initially discovered with a trial of levodopa. I have had three doses of this medication so far and each time I took it the spasms stopped within only a few minutes. It was totally amazing! It is like a pain medication, though, in that it wears off in about four hours and you need another dosage.

My doctor is starting me out slowly, which is a smart thing. The dose I take right now is at bedtime, to give my body a chance to get used to it. Next week I will start a morning dose, and will need to clear my morning schedule, since it does seem to make me pretty "crazy" (woozy-like). I am hoping it is one of those side effects that wears off once your body becomes acclimated to the medication, since I will eventually be taking it four times a day.

I did have a point at which I wondered if I was allergic to the medication, too. I had all of the signs of an allergic reaction, except it did not get so bad that I couldn't breath, thankfully. I have liquid antihistamine handy now, in case it happens again.

The spasms return promptly once the medication wears off (usually a bit less than four hours) and today they are pretty bad. I think that is due to a lot of running around, though, and I hope to rest the remaining part of the day.

On another good note, Ollie had cataract surgery today and we were amazed at how easily it went! She is so eager to have good vision again and what a wonderful age it is we live in, when God has equipped doctors to be able to return a person's sight at the age of 81!