Committee's Decision

I finally heard from the surgery nurse today and she said the committee had indeed recommended me as a good candidate for the DBS surgery. I am still chuckling over the neuropsych testing, though. Today she said, "You could not have had any more flying colors on your neuropsych test." Imagine that. A "crazy" mother of 11 wowing the doctors on a neuropsych test! Sorry folks, but that is hilarious. I have spent so much time having doctors tell me I was just "stressed and depressed," and now that I finally get a neuropsych test done they are all shaking their heads over it in amazement. I think it was all of that "stressful" homeschooling that helped me ace their testing so well, actually. ;-)

I did ask some questions that were specific to UAB and this particular surgery, for us to consider over the weekend. The neurosurgeon who does this type of surgery has been doing it since 1997 and he currently does 3-4 unilateral surgeries per week, for Parkinson's and Essential Tremor. The Dystonia surgery is a bilateral one, however. They have actually only done four other dystonia patients, but have had good results in them all.

I had requested that the surgery be after Jennifer and Micah's wedding, so they were able to accomodate that...barely. If we choose to accept the date, they have it scheduled for April 18, which is four days after the wedding. We will think about this over the weekend and call them with our decision on Monday.

The risk of complications with this surgery is quite low - only about 1% - and the potential for improvement is around 50% - 75%, with some dystonia patients reporting up to a 90% improvement. Success is not guaranteed and perhaps the greatest risk is having the surgery and it not changing things at all, though.

Thankfully, my hope remains in the Lord and not the doctors. I trust Him for guidance and wisdom as we continue to pray over this decision. At this point it looks like we will decide to go forward with the surgery. Please pray with us that God will be glorified throughout the entire process, if we do make this decision in favor of the surgery.